What to Do When You're Diagnosed With Frontotemporal Dementia
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What to Do When You're Diagnosed With Frontotemporal Dementia

Are you or a loved one recently diagnosed with frontotemporal dementia (FTD)? If so, you may be feeling overwhelmed and unsure about what to do next. You can greatly improve your quality of life and face the challenges of frontotemporal dementia with confidence when you know what your next steps are. 

Steps to Take When You've Been Diagnosed With FTD

Here are some steps to consider

Immediate Steps After Diagnosis

Upon receiving a frontotemporal dementia diagnosis, it's crucial to take immediate steps to confirm it and gather information.

  • Confirm the diagnosis
  • Seek a second opinion: It's always a good idea to consult with another healthcare professional to ensure an accurate diagnosis.
  • Find a neurologist or geriatrician experienced in dementia care: These specialists can provide expert guidance and help you navigate your journey with FTD.
  • Educate yourself about frontotemporal dementia
  • Learn about symptoms, progression, and treatment options: Understanding FTD will empower you to make informed decisions about your care.
  • Join support groups or online forums. Connecting with others who are facing similar challenges can also provide valuable insights and emotional support.
  • Inform your family and close friends about the diagnosis
  • Share information and resources about FTD. This will also help your loved ones understand your condition and offer appropriate support.
  • Discuss your needs and expectations. Additionally, open communication is key to ensuring that everyone is on the same page and prepared to face the challenges ahead.

Short-Term Planning

As you begin to adjust to your diagnosis, it's important to start planning for your short-term needs and goals.

  • Assess your current living situation and needs
  • Consider home modifications for safety and accessibility. Making changes to your living space can also help you maintain independence and prevent accidents.
  • Evaluate the need for in-home care or assistance with daily activities. Additionally, early intervention can help you maintain your quality of life and reduce the burden on your loved ones.
  • Explore and research caregiving services like Senior Helpers Dunn. These providers offer specialized assistance tailored to the needs of individuals with dementia.
  • Determine which services best fit your needs and preferences. Checking for available options can also help you make an informed decision about your care.
  • Develop a financial and legal plan
  • Consult with a financial planner and attorney: These professionals can guide you in planning for your future and protecting your interests.
  • Update or create important legal documents, such as a will, power of attorney, and advance healthcare directive: These documents will ensure your wishes are respected and your affairs are in order.

Long-Term Planning

Looking ahead, it's essential to establish a healthcare team, plan for future care needs, and maintain a healthy lifestyle.

  • Establish a healthcare team
  • Choose a primary care doctor and specialists experienced in dementia care. These professionals will play a crucial role in managing your health and adjusting treatment plans as needed.
  • Schedule regular appointments. Staying proactive about your healthcare will also help you manage FTD symptoms and maintain your well-being.
  • Plan for future care needs
  • Discuss the possibility of transitioning to assisted living or memory care communities. This conversation can help you and your loved ones plan for when increased support becomes necessary.
  • Research local facilities and make a list of preferred options. Knowing your choices in advance will make the decision-making process easier when the time comes.
  • Maintain a healthy lifestyle
  • Engage in regular physical activity. Exercise can help manage FTD symptoms and promote overall health.
  • Maintain a balanced diet. Proper nutrition supports brain function and overall well-being.
  • Stay socially connected. Maintaining relationships with friends and family can improve your mood and help stave off feelings of isolation.
  • Participate in activities that promote cognitive health. Engaging in mentally stimulating pursuits can also help you maintain cognitive function and enjoy a fulfilling life.

Senior Helpers Dunn Tailors Care Plans to Your Needs

Taking early action and surrounding yourself with a strong support system is key to living well with frontotemporal dementia. By following these recommendations, you can face the challenges of FTD with confidence and ensure you maintain the best possible quality of life. If you're in Dunn, Fayetteville, Elizabethtown, Cumberland County, Robeson County, or Johnston County, don't hesitate to contact Senior Helpers Dunn for assistance with caregiving services tailored to your needs. We can provide a level of care that evolves as your symptoms progress. Reach out to us now!