Supporting Friends with Dementia
A diagnosis of dementia of any type, including Alzheimer’s, will trigger a cascade of emotions in people. Many with Alzheimer's or dementia, especially when in the early stages while they’re still lucid and in control of themselves, will fear the stigma of the disease and feel confusion and uncertainty over how to maintain their lives. The diagnosis is such a scary thing to face for many people, that they may withdraw and feel isolated from their friends and family, tragically just when they need the most support.
If one of your friends or relatives has received a diagnosis, you may also be faced with uncertainty, fear, and doubt. This can include concerns about the future of your relationship with them, how you can help and be helpful, and how much concern is appropriate to show your friend without crossing a boundary or upsetting them. Educating yourself on the signs and symptoms of dementia can help you to feel more prepared for future interactions with your loved one.
While the time after a diagnosis will of course be uncertain, there’s nothing stopping you from maintaining your friendship and supporting the person you care about. It’s important to remember to have patience, flexibility, and open communication to let your loved one know you’re there to help and understand them in this difficult time.
While the fear of saying the wrong thing can paralyze us, don’t let perfect be the enemy of good. The worst thing to say is nothing at all, to avoid your friend or act like nothing has happened.